Real-World data sought on rare fat disorder drug
NCT ID NCT02325674
First seen Jan 21, 2026 · Last updated May 20, 2026 · Updated 21 times
Summary
This study is a registry that collects information from people with generalized or partial lipodystrophy who are already taking the drug metreleptin. The goal is to monitor safety events like pancreatitis, liver problems, and infections over time. No new treatment is being tested; instead, researchers aim to better understand how the drug works in everyday medical practice. About 100 participants will be enrolled.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for PARTIAL LIPODYSTROPHY are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Addenbrooke's Hospital
RECRUITINGCambridge, CB2 0QQ, United Kingdom
Contact
Contact
-
Alma Mater Studiorum - Università di Bologna
RECRUITINGBologna, 40126, Italy
Contact
Contact
-
Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60611, United States
Contact
Contact
-
Atlanta Diabetes Associates
ACTIVE_NOT_RECRUITINGAtlanta, Georgia, 30318, United States
-
Azienda Ospedaliera Universitaria Policlinico Tor Vergata
WITHDRAWNRoma, 00133, Italy
-
Azienda Ospedaliero Universitaria Pisana (Presidio di Cisanello)
RECRUITINGPisa, 56124, Italy
Contact
Contact
-
CHRU Hôpital Claude Huriez
RECRUITINGLille, Nord, 59800, France
Contact
Contact
-
Children's Hospital of New Orleans/LSU Health Sciences Center
COMPLETEDNew Orleans, Louisiana, 70118, United States
-
Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact
Contact
-
Childrens Hospital of Michigan
RECRUITINGDetroit, Michigan, 48201, United States
Contact
Contact
-
City of Hope
TERMINATEDDuarte, California, 91010, United States
-
Endocrinology Research Associates
RECRUITINGColumbus, Ohio, 43201, United States
Contact
Contact
-
Hôpital Robert Debré
RECRUITINGParis, Paris, France, 75019, France
Contact
Contact
-
Hôpital Saint-Antoine
RECRUITINGParis, 75012, France
Contact
Contact
-
Kinderkrankenhaus Auf der Bult
RECRUITINGHanover, Lower Saxony, 0000, Germany
Contact
Contact
-
Nih/Niddk/Deob
RECRUITINGBethesda, Maryland, 20892, United States
Contact
Contact
-
Ochsner Clinic Foundation
WITHDRAWNNew Orleans, Louisiana, 70121, United States
-
Richmond University Medical Centre
COMPLETEDStaten Island, New York, 10314, United States
-
Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
Contact
Contact
-
UT Southwestern Medical Center
RECRUITINGDallas, Texas, 75390, United States
Contact
Contact
-
Universita del Piemonte Orientale "Amedeo Avogadro"
RECRUITINGNovara, Verceilli, 13100, Italy
Contact
Contact
-
Universitaetsklinikum Leipzig AoeR
RECRUITINGLeipzig, Saxony, 04103, Germany
Contact
Contact
-
Universitaetsklinikum Muenster
RECRUITINGMünster, North Rhine-Westphalia, 48149, Germany
Contact
Contact
-
Universitaetsklinikum Ulm
RECRUITINGUlm, Baden-Wurttemberg, 89075, Germany
Contact
Contact
-
University Alabama at Birmingham
TERMINATEDBirmingham, Alabama, 40506, United States
-
University of Kansas Medical Center Research Institute, Inc.
RECRUITINGKansas City, Kansas, 66160, United States
Contact
Contact
-
University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
Contact
Contact
-
University of Pennsylvania
WITHDRAWNPhiladelphia, Pennsylvania, 19104, United States
Conditions
Explore the condition pages connected to this study.