13,000 patients join quest to unlock mysteries of rare mast cell diseases
NCT ID NCT06186856
First seen Jan 04, 2026 · Last updated Jun 19, 2026 · Updated 29 times
Summary
This study will collect health information from 13,000 children and adults with mast cell disorders across 20 French medical centers. Researchers want to learn how common these diseases are, how they progress, and what symptoms patients have. The goal is to improve diagnosis and care for these rare conditions.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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CHU - Poitiers
RECRUITINGPoitiers, France
Contact Email: •••••@•••••
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CHU AMIENS site sud
RECRUITINGAmiens, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU Grenoble
RECRUITINGGrenoble, 38700, France
Contact Email: •••••@•••••
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CHU Purpan
RECRUITINGToulouse, 40031, France
Contact Email: •••••@•••••
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CHU Réunion sud - Saint Pierre
RECRUITINGSaint-Pierre, 97448, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU de Montpellier
RECRUITINGMontpellier, 34090, France
Contact Email: •••••@•••••
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CHU de NANCY
RECRUITINGNancy, 54035, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU de TOURS
RECRUITINGTours, 37000, France
Contact Email: •••••@•••••
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Chru - Strasbourg
RECRUITINGStrasbourg, 67200, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chru Lille
RECRUITINGLille, 59037, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chu - Besancon
RECRUITINGBesançon, 25000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chu - Caen
RECRUITINGCaen, 14033, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Email: •••••@•••••
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Chu - Clermont Ferrand
RECRUITINGClermont-Ferrand, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chu - La Timone - Marseille
RECRUITINGMarseille, 13005, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chu - Limoges
RECRUITINGLimoges, 87000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chu - Nantes
RECRUITINGNantes, 44000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chu - Rennes
RECRUITINGRennes, 35000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Chu Angers
RECRUITINGAngers, 49100, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospices Civils de Lyon
RECRUITINGLyon, France
Contact Email: •••••@•••••
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Hôpital Necker-Enfants malades
RECRUITINGParis, 75015, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact
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Hôpital Universitaire Pitié Salpetrière
RECRUITINGParis, 75013, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could lead to better diagnosis and care guidelines for mast cell disorders in France.
What could go wrong
This is an observational study, not a treatment trial, so it won't directly help participants. Results may take years and might not apply outside France.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.