New hope for kids with rare muscle disease: daily shot tested for Long-Term safety
NCT ID NCT06435312
First seen Dec 26, 2025 · Last updated May 23, 2026 · Updated 26 times
Summary
This study looks at the long-term safety of a daily injection called zilucoplan in children with a rare muscle-weakening disease called generalized myasthenia gravis. It includes up to 8 children who have already completed a previous study. The goal is to see if the drug is safe and tolerable over an additional 52 weeks.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Mg0015 20104
Seoul, South Korea
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Mg0015 20220
Seoul, South Korea
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Mg0015 40144
Milan, Italy
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Mg0015 40218
Warsaw, Poland
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Mg0015 40735
Glasgow, United Kingdom
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Mg0015 40736
London, United Kingdom
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Mg0015 40774
Katowice, Poland
Conditions
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