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New study tracks Long-Term safety of livmarli in rare liver disease patients

NCT ID NCT07290257

First seen Jan 11, 2026 · Last updated May 19, 2026 · Updated 20 times

Summary

This study follows about 100 people with Alagille syndrome who are taking the medication Livmarli. Researchers want to see how safe the drug is over time and how it affects liver function and overall health. Participants will be monitored for side effects, changes in liver tests, and long-term outcomes like the need for a liver transplant.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • AO Ospedale PAPA GIOVANNI XXIII

    RECRUITING

    Bergamo, Lombardy, 24126, Italy

    Contact Email: •••••@•••••

  • Bicetre University Hospital

    RECRUITING

    Le Kremlin-Bicêtre, Île-de-France Region, 94270, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU de Toulouse - Hôpital des Enfants

    RECRUITING

    Toulouse, Occitanie, 31049, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Charite Berlin

    NOT_YET_RECRUITING

    Berlin, 13353, Germany

    Contact Email: •••••@•••••

  • Children's University Hospital Essen

    NOT_YET_RECRUITING

    Essen, 45149, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Cliniques Universitaires Saint Luc (UCLouvain)

    NOT_YET_RECRUITING

    Brussels, 1200, Belgium

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hospices Civils de Lyon - Hopital Femme Mère Enfant

    RECRUITING

    Bron, Auvergne-Rhône-Alpes, 69500, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hospital Universitairo Vall D'Hebron

    RECRUITING

    Barcelona, Catalonia, 08035, Spain

    Contact Email: •••••@•••••

  • Hospital Universitario La Paz

    RECRUITING

    Madrid, 28046, Spain

    Contact Email: •••••@•••••

  • Istituto mediterraneo trapianti - ISMETT

    NOT_YET_RECRUITING

    Palermo, Sicily, 90127, Italy

    Contact Email: •••••@•••••

  • University Hospital Gent (UZ Gent)

    NOT_YET_RECRUITING

    Ghent, 9000, Belgium

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University Hospital Hamburg-Eppendorf

    NOT_YET_RECRUITING

    Hamburg, 20246, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University Medical Center Groningen (UMCG)

    NOT_YET_RECRUITING

    Groningen, 9713GZ, Netherlands

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.