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Culturally tailored questionnaire aims to boost advance care planning in indigenous communities

NCT ID NCT06538493

Knowledge-focused Sponsor: Southcentral Foundation Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jul 10, 2026 · Updated 4 times

Summary

This trial tests a culturally tailored program called JUMPSTART-ANAI that helps Alaska Native and American Indian adults start conversations about their future healthcare wishes with their primary care providers. Participants fill out a questionnaire about their experiences and concerns, then receive tips to bring up advance care planning at their next visit. The study includes 400 adults aged 40 or older with serious illness, or 65 and older, who have not yet documented advance directives.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
JUMPSTART-ANAI questionnaire and feedback form
What this could lead to
If effective, this approach could help more Alaska Native and American Indian adults document their healthcare wishes, ensuring care aligns with their values.
What could go wrong
This is a behavioral intervention in a specific population, so results may not apply broadly. The trial is relatively small and measures outcomes like advance directive completion, which may not capture all benefits.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 400 people

The number the study aims to enrol. It can still change while the study runs.

Started

Apr 2025

Expected to finish

May 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

40 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Age 40 or older with a qualifying serious illness condition (e.g., COPD) OR Age 65 or older (regardless of diagnosis) AND Alaska Native and/or American Indian AND Empaneled to a primary care provider AND 2 or more to primary care in last 12 months AND No advance directives documented in electronic health record Exclusion Criteria: Unable to provide informed consent AND/OR Not able to complete 30-minute study visit by phone, video call, or in person

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As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Advance care planning

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Southcentral Foundation

    RECRUITING

    Anchorage, Alaska, 99508, United States

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