Real-World check: does iptacopan help PNH patients in russia?
NCT ID NCT07036718
First seen Dec 08, 2025 · Last updated May 19, 2026 · Updated 27 times
Summary
This study followed 6 adults with PNH who were already taking iptacopan as part of their normal care in Russia. Researchers tracked whether their hemoglobin levels improved and if they needed fewer blood transfusions over 6 to 12 months. The study was stopped early, so results are limited.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Novartis Investigative Site
Syktyvkar, Komi, 167904, Russia
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Novartis Investigative Site
Grozny, 364047, Russia
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Novartis Investigative Site
Moscow, 129110, Russia
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Novartis Investigative Site
Murmansk, 183047, Russia
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Novartis Investigative Site
Yuzhno-Sakhalinsk, 693000, Russia
Conditions
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