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New rehab program aims to ease symptoms of rare neurological disorders

NCT ID NCT06261424

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study tests a 12-week supervised rehabilitation program for people with two rare genetic conditions that cause walking and balance problems (spastic ataxias). The program includes twice-weekly therapy sessions and once-weekly pool exercises. Researchers want to see if it reduces disease severity and fall risk compared to usual care. 84 participants are being recruited.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
supervised rehabilitation program (balance, coordination, and pool exercises)
What this could lead to
If it works, this could provide an effective non-drug therapy to improve mobility and reduce falls in people with spastic ataxias.
What could go wrong
This is a relatively small trial (84 people) and the program requires significant time and supervision, so results may not apply to everyone. There is also no guarantee it will outperform usual care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 84 people

The number the study aims to enrol. It can still change while the study runs.

Started

Feb 2024

Expected to finish

Mar 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

16 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * have a confirmed genetic diagnosis of ARSACS or SPG7 * be able to maintain standing position and to transfert * be authorized by their treating neurologist * speak French or English * be able to give informed consent. Exclusion Criteria: * have active participation in a rehabilitation program (self-reported information) * have another condition causing physical limitations * be uncomfortable in a swimming pool * be pregnant.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    5 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • CIUSSS de la Capitale-Nationale, Hôpital de Baie-Saint-Paul

    NOT_YET_RECRUITING

    Baie-Saint-Paul, Quebec, G3Z 0K3, Canada

  • CIUSSS de la Capitale-Nationale, Hôpital de La Malbaie

    NOT_YET_RECRUITING

    La Malbaie, Quebec, G5A 1T1, Canada

  • CIUSSS de la Capitale-Nationale, installation IRDPQ

    RECRUITING

    Québec, Quebec, G1M 2S8, Canada

  • CIUSSS du Centre-Sud-de-l'Île-de-Montréal, installation Centre de réadaptation Lucie-Bruneau

    RECRUITING

    Montreal, Quebec, H2H 2N8, Canada

  • Clinique des maladies neuromusculaires du Centre intégré universitaire de santé et de services sociaux (CIUSSS) du Saguenay-Lac-Saint-Jean, installation Hôpital Jonquière

    RECRUITING

    Saguenay, Quebec, G7X 7X2, Canada