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Promising drug combo may tame rare bone disease flares

NCT ID NCT06724562

First seen Jan 06, 2026 · Last updated May 25, 2026 · Updated 22 times

Summary

This study looks at whether anti-IL1 medications (like anakinra or canakinumab) can reduce painful flare-ups and abnormal bone growth in people with fibrodysplasia ossificans progressiva (FOP), a rare genetic condition. About 11 participants with severe FOP will be tracked before and during treatment. The goal is to gather data needed to plan a larger future study.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • UCSF

    RECRUITING

    San Francisco, California, 94143, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.