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Can a helping hand ease the burden of pediatric liver transplants?

NCT ID NCT05700799

Symptom relief Sponsor: University of California, San Francisco Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Aug 11, 2026 · Last updated Aug 12, 2026 · Updated 1 time

Summary

This pilot study explores whether adding a health advocate to the transplant team can help families of children who have had a liver transplant. The advocate would assist with unmet social needs like food insecurity, improve communication with doctors, and coordinate care. The study involves 15 participants and measures how acceptable and feasible this support is, as well as changes in caregiver experience and medication adherence.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Health Advocate (Patient Navigator) - a behavioral intervention providing support with social needs, communication, and care coordination
What this could lead to
If successful, this could point toward a standard support service that helps families of liver transplant children manage everyday challenges and improve their experience with care.
What could go wrong
This is a small pilot focused on feasibility, not proof of effectiveness. Results may not apply broadly, and the intervention may not change long-term health outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

15 people

The number who actually took part.

Started

Mar 2023

Finished

Jan 2026

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

Up to 17 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: 1. Patients under 18 years if age that have undergone liver transplantation. 2. Subject and/or parent/legal guardian can provide written informed consent and willing to comply with study procedures. 3. Subject and/or parent/ legal guardian is willing to be contacted in the future by study staff. 4. Patient and/or caregiver felt to be a good fit for this pilot by transplant team. Exclusion Criteria: * Caregiver unwilling or unable to complete the survey. * Child is a ward of the state (e.g. foster care) since present circumstances may not be reflective of child's past or future circumstances. * Non-English, non-Spanish speakers. * Non-US residents. * Greater than 18 years of age at the time of enrollment.

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As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Liver transplant; complications

Contacts and locations

Locations

  • University of California San Francisco

    San Francisco, California, 94158, United States

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