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Scientists launch massive GIST registry to unlock secrets of rare digestive cancer

NCT ID NCT07273045

First seen Dec 16, 2025 · Last updated Jun 20, 2026 · Updated 27 times

Summary

This registry study will collect medical information and biological samples from 1,000 people diagnosed with GIST, a rare digestive tract tumor. It does not test any new treatment—participants continue their usual care. The goal is to better understand how GIST behaves, especially rare forms, and to help design future studies and treatments.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University Hospital Essem

    Essen, North Rhine-Westphalia, 45147, Germany

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could help researchers identify risk factors and design better treatments for rare forms of GIST.

What could go wrong

This is an observational registry, not a treatment trial. It collects data only and will not directly benefit participants. Results may take years to influence care.

Conditions

The condition(s) this trial relates to.

gastrointestinal stromal tumor

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.