New registry aims to unlock secrets of rare adrenal cancer
NCT ID NCT00453674
First seen Jun 27, 2026 · Last updated Aug 25, 2026 · Updated 2 times
Summary
This study is a registry that collects information from up to 1,000 people diagnosed with adrenocortical carcinoma, a rare cancer of the adrenal gland. The goal is to gather data on how the disease progresses and how different treatments work, so doctors can better understand the cancer and plan future studies. No new treatments are being tested; instead, the registry helps researchers learn from real-world patient experiences.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Participants
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About 1,000 people
The number the study aims to enrol. It can still change while the study runs.
- Started
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Jan 2003
- Expected to finish
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Dec 2030
An estimate. End dates often move.
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Adrenocortical carcinoma patients in Germany (or treated in Germany)
- Ages
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Children (under 18), adults (18 to 64) and older adults (65 and over)
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Histologically confirmed diagnosis of adrenocortical carcinoma
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Genom att skicka in godkänner du våra Användarvillkor
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
How to take part
Only the study team decides who joins. These are the ways to reach them.
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The places running it
1 site. The list below names each one and where it is.
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The official record
ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.
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A doctor treating you
A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.
Contacts and locations
Locations
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University of Wuerzburg
RECRUITINGWürzburg, 97080, Germany
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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- Liver tumors targeted directly: old pump, new drug
- Study aims to uncover hidden side effects of common adrenal cancer drug
- Scientists search for keys to unlock immune attack on rare adrenal cancer
- Scientists investigate adrenal tumors and seek better therapies
- New hope for rare cancers? drug combo shows promise in early trial