Den här översättningen är inte klar ännu. Den här sidan är just nu på engelska.

Gå till den engelska sidan

Cure My Disease

Don't miss your cure!

 Log in / Sign up

Can a phone call help cancer survivors get the genetic answers they need?

NCT ID NCT04455698

Knowledge-focused Sponsor: University of Chicago Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 24, 2026 · Last updated Aug 13, 2026 · Updated 3 times

Summary

This study looked at whether offering genetic counseling by phone or video could help more childhood cancer survivors get genetic testing. About 391 survivors took part, comparing remote counseling to usual care. The goal was to see if remote services increase testing uptake and improve knowledge and distress.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Remote genetic counseling (by phone or video)
What this could lead to
If successful, this could show that remote genetic counseling helps more cancer survivors get the genetic testing they need.
What could go wrong
This is a completed study, so results are available but may not apply to all cancer survivors or settings. It tested access, not a new treatment.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

511 people

The number who actually took part.

Started

Aug 2021

Finished

Dec 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Able to understand and communicate in English or Spanish * Currently residing in the US * Childhood Cancer Survivor Study Participant survivors of the following primary cancers: * CNS tumor * Sarcoma (except Ewing sarcoma) * Hepatoblastoma * Leukemia * Childhood Cancer Survivor Study Participant with a family history of a child with cancer: * 2 or more malignancies in childhood (age 18 or younger) * A first degree relative (parent or sibling) with cancer aged 45 or younger * 2 or more second degree relatives with cancer aged 45 or younger (same side of family) * Parents of the child with cancer are related (consanguinity) * Other family history that meets NCCN criteria * Able to communicate remotely through remote telegenetic platforms (phone or videoconference) with genetic counselors Exclusion Criteria: * Uncorrected or uncompensated speech defects that would lead to the participant being unable to communicate effectively with genetic counselor * Currently residing in a US state or territory where genetic counselors are not licensed to provide care * Uncontrolled psychiatric/mental condition or severe physical, neurological or cognitive deficits rendering individual unable to understand study goals and task * Participants who have already completed and received a clinically appropriate multi-gene panel genetic testing

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for Cancer are added.

Vår säkerhetsrekommendation!

Genom att skicka in godkänner du våra Användarvillkor

Conditions

The condition(s) this trial relates to.

cancer central nervous system neoplasm childhood malignant neoplasm hepatoblastoma leukemia neoplasm sarcoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Cancer

Contacts and locations

Locations

  • St Jude Children's Research Hospital

    Memphis, Tennessee, 38105-3678, United States

  • University of Chicago Medical Center

    Chicago, Illinois, 60637, United States

  • University of Pennsylvania

    Philadelphia, Pennsylvania, 19104, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.