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Can online genetic counseling boost cancer testing rates?

NCT ID NCT03985852

Knowledge-focused Sponsor: University of Utah Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 26, 2026 · Updated 1 time

Summary

This study looked at over 3,000 people at risk for certain cancers to see if a patient-directed online genetic counseling approach works as well as standard care. Participants were randomly assigned to either use an automated genetics education assistant or receive enhanced standard counseling. The goal was to compare how many people completed genetic testing and followed cancer prevention recommendations.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this could show that a patient-directed online genetic counseling model is as effective as standard care, making genetic testing more accessible.
What could go wrong
This is an observational study comparing service delivery models, not testing a new treatment. Results may not apply to all populations or settings.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

3,073 people

The number who actually took part.

Started

Feb 2020

Finished

Aug 2024

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

25 to 60 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Speaks English or Spanish AND * First degree relative or second degree relative diagnosed with the following regardless of age: Ovarian Cancer, Pancreas Cancer OR * First degree relative or second degree relative diagnosed with the following \<50 years of age: Breast Cancer, Colorectal Cancer, Endometrial Cancer. OR * Three of more relatives on the same side of the family diagnosed with the following clusters of cancer regardless of age: * Breast Cancer, Ovarian Cancer, Pancreas Cancer, Prostate Cancer * Colorectal Cancer, Endometrial Cancer, Ovarian Cancer, Pancreas Cancer, Urinary tract, Brain, Small intestine * Melanoma, Pancreas Cancer OR * Ashkenazi Jewish ancestry and family history of Breast Cancer, Ovarian Cancer, Pancreas Cancer, Prostate Cancer. Exclusion Criteria: * Patients with a prior cancer diagnosis, other than non-melanoma skin cancer, and/or prior genetic counseling or testing related to hereditary cancer. * Patients unable to access the patient portal

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Conditions

The condition(s) this trial relates to.

cancer neoplasm Risk Reduction Behavior

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Cancer Risk reduction behavior

Contacts and locations

Locations

  • NYU School of Medicine

    New York, New York, 10016, United States

  • University of Utah

    Salt Lake City, Utah, 84112, United States

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