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NIH launches major study to unravel genetic mysteries

NCT ID NCT00369421

First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 26 times

Summary

This study aims to diagnose and treat people with certain genetic disorders, called inborn errors of metabolism. Researchers hope to learn more about these conditions and provide access to research. Up to 4,000 participants aged 1 month or older with known or suspected genetic disorders will undergo standard medical tests and treatments.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.