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One-Shot gene therapy offers hope for babies with devastating muscle disease

NCT ID NCT03461289

Summary

This study tested a single-dose gene replacement therapy for infants under 6 months old with spinal muscular atrophy (SMA) type 1, a severe genetic disease that weakens muscles. The goal was to see if the one-time intravenous treatment could help babies achieve major milestones like sitting independently and improve survival without permanent breathing support. The trial followed 33 infants for 18 months to measure the therapy's effectiveness and safety.

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Contacts and locations

Locations

  • Carlo Besta Neurological Research Institute

    Milan, Italy

  • Great Ormond Street Hospital for Children

    London, United Kingdom

  • Hôpital Armand Trousseau

    Paris, France

  • Istituto Gianninia Gaslini

    Genova, Italy

  • Neuropédiatrie - Centre de Référence des Maladies Neuromusculaires

    Liège, Belgium

  • Policlinico "G. Martino"

    Messina, Italy

  • Policlinico Gemelli

    Rome, Italy

  • The John Walton Muscular Dystrophy Research Centre MRC Centre for Neuromuscular Diseases at Newcastle

    Newcastle upon Tyne, United Kingdom

  • University Hospital Ghent Neuromuscular reference center

    Ghent, Belgium

  • University of Milan

    Milan, Italy

Conditions

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