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Gene therapy offers hope for kids with rare brain disease

NCT ID NCT02716246

First seen Nov 06, 2025 · Last updated May 22, 2026 · Updated 30 times

Summary

This study tests a gene therapy called UX111 for children with Sanfilippo syndrome type A (MPS IIIA), a rare genetic disease that damages the brain. The treatment delivers a working gene to help the body break down harmful substances. The goal is to slow or stop the disease, but children will still need ongoing care and monitoring.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Children's Hospital of Pittsburgh

    COMPLETED

    Pittsburgh, Pennsylvania, 15224, United States

  • Hospital Clínico Universitario de Santiago

    RECRUITING

    Santiago de Compostela, 15706, Spain

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

    Contact

  • Nationwide Children's Hospital

    COMPLETED

    Columbus, Ohio, 43205, United States

  • Vall d'Hebron Barcelona Hospital Campus

    RECRUITING

    Barcelona, 08035, Spain

    Contact Email: •••••@•••••

    Contact

  • Women's and Children's Hospital

    COMPLETED

    North Adelaide, South Australia, 5006, Australia

Conditions

Explore the condition pages connected to this study.