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Stem cell gene therapy offers hope for children with fatal brain disease

NCT ID NCT01560182

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 29 times

Summary

This study tested a gene therapy for children with metachromatic leukodystrophy (MLD), a rare and fatal genetic disease that damages the brain and nerves. Doctors took stem cells from each child, added a working copy of the faulty gene, and put the cells back after mild chemotherapy. The goal was to slow or stop the disease. The trial included 20 children who were either not yet showing symptoms or had early signs of the disease.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Ospedale San Raffaele - Telethon Institute for Gene Therapy (OSR-TIGET)

    Milan, 20132, Italy

Conditions

Explore the condition pages connected to this study.