Parents' reports could unlock clues to reduce seizures in rare disorder
NCT ID NCT06663163
Summary
This completed survey aimed to understand how fevers affect seizures in children with CDKL5 deficiency disorder, a rare genetic condition. Researchers collected information from 131 families to learn if seizures get worse during or after a fever. The goal is to use this knowledge to develop better strategies for reducing seizures and improving daily life for these children.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for CDKL5 DEFICIENCY DISORDER are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Locations
-
Xuanwu Hospital,Capital Medical University
Beijing, Beijing Municipality, 100053, China
Conditions
Explore the condition pages connected to this study.