What do families of kids with SMA type 1 go through? new study asks parents directly.
NCT ID NCT07596277
First seen May 30, 2026 · Last updated Jun 14, 2026 · Updated 4 times
Summary
This study will interview 15 parents or guardians of children with spinal muscular atrophy type 1 (SMA1) to learn about their daily experiences with feeding and communication. Even though newer medicines have improved survival, how they affect swallowing and speech is still unclear. The goal is to capture real-life challenges and needs to help shape better support and care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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GSTT Evelina Neurosciences
London, SE1 7EU, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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