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New study asks: is fabry treatment worth it after 65?

NCT ID NCT07277361

First seen Jan 05, 2026 · Last updated Jun 13, 2026 · Updated 26 times

Summary

This study looks at how Fabry disease affects the quality of life of people aged 65 and older, both those who receive treatment and those who do not. Researchers will follow 100 participants for 5 years, using a standard quality-of-life questionnaire. The goal is to understand whether continuing or starting treatment after age 65 provides meaningful benefits.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Groupe Hospitalier Diaconesses Croix Saint-Simon

    RECRUITING

    Paris, France, 75020, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

The condition(s) this trial relates to.

Fabry disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.