Wearable study reveals hidden struggles in fabry patients
NCT ID NCT06484478
First seen Mar 21, 2026 · Last updated Jun 06, 2026 · Updated 10 times
Summary
This study monitored 100 adults with Fabry disease in the UK to understand how their daily physical activity, sleep, and quality of life are connected. Participants wore a clinical-grade device and filled out questionnaires about their mental health and well-being. The goal was to gather real-world data to help improve care for people living with Fabry disease.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Royal Free London NHS Foundation Trust
London, United Kingdom
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
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