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Real-World watch: how safe is fabhalta for PNH?

NCT ID NCT06606314

Ongoing Knowledge-focused Sponsor: Novartis Pharmaceuticals Source: ClinicalTrials.gov ↗

First seen Jan 05, 2026 · Last updated May 22, 2026 · Updated 23 times

Summary

This study watches 132 people with paroxysmal nocturnal hemoglobinuria (PNH) who are already taking Fabhalta. Researchers track infections, side effects, and what happens if treatment stops. No new drug is tested—the goal is to learn more about safety in everyday use.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Novartis Investigative Site

    Handa, Aichi-ken, 475-0817, Japan

  • Novartis Investigative Site

    Nagoya, Aichi-ken, 453-8511, Japan

  • Novartis Investigative Site

    Nagoya, Aichi-ken, 466-8650, Japan

  • Novartis Investigative Site

    Okazaki, Aichi-ken, 444-8553, Japan

  • Novartis Investigative Site

    Toyohashi, Aichi-ken, 441-8570, Japan

  • Novartis Investigative Site

    Toyota, Aichi-ken, 470-0343, Japan

  • Novartis Investigative Site

    Toyota, Aichi-ken, 471-8513, Japan

  • Novartis Investigative Site

    Hachinohe, Aomori, 0391104, Japan

  • Novartis Investigative Site

    Chiba, Chiba, 2608677, Japan

  • Novartis Investigative Site

    Funabashi, Chiba, 273-8556, Japan

  • Novartis Investigative Site

    Kashiwa, Chiba, 277-8567, Japan

  • Novartis Investigative Site

    Narita, Chiba, 286-8523, Japan

  • Novartis Investigative Site

    Matsuyama, Ehime, 790-8524, Japan

  • Novartis Investigative Site

    Fukuoka, Fukuoka, 810-8563, Japan

  • Novartis Investigative Site

    Kurume, Fukuoka, 830-8543, Japan

  • Novartis Investigative Site

    Aizu-Wakamatsu, Fukushima, 9693482, Japan

  • Novartis Investigative Site

    Kohriyama, Fukushima, 963-8022, Japan

  • Novartis Investigative Site

    Maebashi, Gunma, 371-0811, Japan

  • Novartis Investigative Site

    Fukuyama, Hiroshima, 720-0001, Japan

  • Novartis Investigative Site

    Hakodate, Hokkaido, 0410821, Japan

  • Novartis Investigative Site

    Sapporo, Hokkaido, 0030006, Japan

  • Novartis Investigative Site

    Sapporo, Hokkaido, 0640804, Japan

  • Novartis Investigative Site

    Amagasaki, Hyōgo, 660-8511, Japan

  • Novartis Investigative Site

    Ashiya, Hyōgo, 659-0012, Japan

  • Novartis Investigative Site

    Himeji, Hyōgo, 670-8540, Japan

  • Novartis Investigative Site

    Kobe, Hyōgo, 6500047, Japan

  • Novartis Investigative Site

    Kobe, Hyōgo, 651-0072, Japan

  • Novartis Investigative Site

    Nishinomiya, Hyōgo, 662-0918, Japan

  • Novartis Investigative Site

    Nishinomiya, Hyōgo, 6638501, Japan

  • Novartis Investigative Site

    Tsukuba, Ibaraki, 300-2622, Japan

  • Novartis Investigative Site

    Tsukuba, Ibaraki, 3058576, Japan

  • Novartis Investigative Site

    Tsukuba, Ibaraki, Ibaraki, Japan

  • Novartis Investigative Site

    Morioka, Iwate, 0200066, Japan

  • Novartis Investigative Site

    Sakaidechō, Kagawa-ken, 762-8550, Japan

  • Novartis Investigative Site

    Kanoya, Kagoshima-ken, 893-0024, Japan

  • Novartis Investigative Site

    Isehara, Kanagawa, 259-1193, Japan

  • Novartis Investigative Site

    Yokohama, Kanagawa, 232-0024, Japan

  • Novartis Investigative Site

    Kumamoto, Kumamoto, 860-8556, Japan

  • Novartis Investigative Site

    Kyoto, Kyoto, 603-8151, Japan

  • Novartis Investigative Site

    Uji, Kyoto, 611-0042, Japan

  • Novartis Investigative Site

    Ōsaki, Miyagi, 989-6183, Japan

  • Novartis Investigative Site

    Miyazaki, Miyazaki, 880-8510, Japan

  • Novartis Investigative Site

    Nobeoka, Miyazaki, 882-0835, Japan

  • Novartis Investigative Site

    Matsumoto, Nagano, 3908621, Japan

  • Novartis Investigative Site

    Nagano, Nagano, 3808582, Japan

  • Novartis Investigative Site

    Suwa, Nagano, 392-8510, Japan

  • Novartis Investigative Site

    Ōmura, Nagasaki, 856-8562, Japan

  • Novartis Investigative Site

    Ikoma, Nara, 630-0293, Japan

  • Novartis Investigative Site

    Nagaoka, Niigata, 940-2085, Japan

  • Novartis Investigative Site

    Beppu, Oita Prefecture, 874-0840, Japan

  • Novartis Investigative Site

    Uruma, Okinawa, 904-2293, Japan

  • Novartis Investigative Site

    Habikino, Osaka, 583-0872, Japan

  • Novartis Investigative Site

    Izumi, Osaka, 594-0071, Japan

  • Novartis Investigative Site

    Moriguchi, Osaka, 570-8540, Japan

  • Novartis Investigative Site

    Suita, Osaka, 565-0871, Japan

  • Novartis Investigative Site

    Saga, Saga-ken, 849-8501, Japan

  • Novartis Investigative Site

    Fukaya, Saitama, 366-0052, Japan

  • Novartis Investigative Site

    Kawagoe, Saitama, 3508550, Japan

  • Novartis Investigative Site

    Tokorozawa, Saitama, 359-0037, Japan

  • Novartis Investigative Site

    Hikone, Shiga, 522-0057, Japan

  • Novartis Investigative Site

    Ōtsu, Shiga, 520-0804, Japan

  • Novartis Investigative Site

    Rittō, Shiga, 520-3046, Japan

  • Novartis Investigative Site

    Iwata, Shizuoka, 438-8550, Japan

  • Novartis Investigative Site

    Shimotsuga Gun, Tochigi, 3210293, Japan

  • Novartis Investigative Site

    Shimotsuke, Tochigi, 329-0498, Japan

  • Novartis Investigative Site

    Utsunomiya, Tochigi, 321-0974, Japan

  • Novartis Investigative Site

    Bunkyo Ku, Tokyo, 1138431, Japan

  • Novartis Investigative Site

    Higashimurayama, Tokyo, 189-8511, Japan

  • Novartis Investigative Site

    Itabashi Ku, Tokyo, 1738606, Japan

  • Novartis Investigative Site

    Itabashi-ku, Tokyo, 1738610, Japan

  • Novartis Investigative Site

    Meguro City, Tokyo, 153-8581, Japan

  • Novartis Investigative Site

    Minato-ku, Tokyo, 105-8471, Japan

  • Novartis Investigative Site

    Nerima City, Tokyo, 113-0033, Japan

  • Novartis Investigative Site

    Nerima City, Tokyo, 179-0072, Japan

  • Novartis Investigative Site

    Ōta-ku, Tokyo, 1438541, Japan

  • Novartis Investigative Site

    Shibuya City, Tokyo, 150-8935, Japan

  • Novartis Investigative Site

    Shinagawa Ku, Tokyo, 1418625, Japan

  • Novartis Investigative Site

    Shinagawa-ku, Tokyo, 1428666, Japan

  • Novartis Investigative Site

    Shinjuku Ku, Tokyo, 160-0023, Japan

  • Novartis Investigative Site

    Toyama, Toyama, 930-0859, Japan

  • Novartis Investigative Site

    Tanabe, Wakayama, 646-8588, Japan

  • Novartis Investigative Site

    Kofu, Yamanashi, 400-8506, Japan

  • Novartis Investigative Site

    Fukushima, 9601295, Japan

  • Novartis Investigative Site

    Ishikawa, 9208641, Japan

  • Novartis Investigative Site

    Kagoshima, 892-0853, Japan

  • Novartis Investigative Site

    Kyoto, 604-8845, Japan

  • Novartis Investigative Site

    Kyoto, 6068507, Japan

  • Novartis Investigative Site

    Niigata, 9518520, Japan

  • Novartis Investigative Site

    Okayama, 7008558, Japan

  • Novartis Investigative Site

    Osaka, 542-0081, Japan

  • Novartis Investigative Site

    Shizuoka, 422-8527, Japan

Conditions

Explore the condition pages connected to this study.

PAROXYSMAL NOCTURNAL HEMOGLOBINURIA