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Hidden eye problems found in ichthyosis patients

NCT ID NCT03464994

Knowledge-focused Sponsor: University Hospital, Toulouse Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study examined 152 people with hereditary ichthyosis to find out how common eye problems are. Participants received a full eye exam, including tests for dry eye, corneal shape, and vision. The goal was to detect hidden issues like keratoconus, which can lead to vision loss if untreated.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could lead to better eye screening guidelines for people with ichthyosis, helping catch problems early.
What could go wrong
This is an observational study, not a treatment trial. It only measures eye issues, so it won't directly improve health. Results may not apply to all forms of ichthyosis.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

152 people

The number who actually took part.

Started

Jul 2017

Finished

Jun 2022

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

6 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: For ichthyosis population: * Hereditary ichthyosis, whatever form or ongoing therapy. * Parental permission for minors For controls: * Patients who consult an ophthalmologist for refractive surgery screening or systematic eye examination * Parental permission for minors Exclusion Criteria: For both populations: * Patient who cannot stay seated * Wearing contact lens within the last 7 days * No social security * Past medical history of corneal or eye surgery or eye condition (glaucoma, uveitis, keratoconus, retinal diseases) * Impossibility to fill the questionnaires

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Conditions

The condition(s) this trial relates to.

ichthyosis inherited ichthyosis keratoconus

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Ichthyosis

Contacts and locations

Locations

  • University Hospital of Toulouse

    Toulouse, 31000, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.