New study tracks fabry drug elfabrio in 100 patients
NCT ID NCT06663358
First seen Nov 16, 2025 · Last updated May 01, 2026 · Updated 25 times
Summary
This study follows about 100 adults with Fabry disease who are taking or planning to take the drug Elfabrio. Researchers will watch kidney function, heart health, and side effects over time. The goal is to see how well the drug works in everyday medical care.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Emory University School of Medicine
RECRUITINGAtlanta, Georgia, 30322, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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General Hospital Slovenj Gradec
RECRUITINGSlovenj Gradec, 2380, Slovenia
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Infusion Associates
RECRUITINGGrand Rapids, Michigan, 49525, United States
Contact
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Lysosomal & Rare Disorder Research & Treatment Center (LRDRTC)
RECRUITINGFairfax, Virginia, 22030, United States
Contact
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Northwestern University - Feinberg School of Medicine - Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60611, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Salford Royal
RECRUITINGSalford, Greater Manchester, M6 8HD, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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The Royal Free Hospital
RECRUITINGLondon, NW3 2QG, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital
RECRUITINGEdgbaston, Birmingham, B152TH, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Iowa Hospitals and Clinics
RECRUITINGIowa City, Iowa, 52242, United States
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.