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Dystonia study seeks to map Disease's Real-World toll

NCT ID NCT07111663

Knowledge-focused Sponsor: Vima Therapeutics Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Aug 20, 2026 · Updated 2 times

Summary

This study watches 200 people with isolated dystonia (affecting more than one body part) to see how the condition changes over time. Researchers will collect information on symptoms, daily activities, pain, and social life using standard rating scales. No experimental treatment is given—the goal is simply to better understand the disease and improve future care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 200 people

The number the study aims to enrol. It can still change while the study runs.

Started

Jun 2025

Expected to finish

Oct 2026

An estimate. End dates often move.

Lead sponsor

A company

The lead sponsor is a pharmaceutical, biotech, or medical-device company.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Isolated (Primary) Dystonia

Ages

12 to 65 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Each participant must meet the following criteria at Visit 1 to be eligible to continue in the study: * The participant is willing to sign an informed consent form indicating that he/she understands the purpose of the study; understands and can perform, complete, and comply with all the assessments that are required during the study; and is willing to participate in the study. * The participant is a male or female between 12 and 65 years of age (inclusive). * The participant has a clinical diagnosis of isolated (or primary) dystonia for at least one year prior to Visit 1 and meets the study definition of segmental/multifocal or generalized dystonia at Visit 1. Exclusion Criteria: Any participant who meets any of the following criteria at Visit 1 will be excluded from this study: * The participant has a diagnosis of focal dystonia at Visit 1. * The participant has a diagnosis of dopa-responsive dystonia, secondary dystonia, or psychogenic/functional dystonia. * The participant has any significant ongoing disease, disorder, laboratory abnormalities, alcohol or illicit drug abuse or dependence, environmental factor, or any ongoing or history of any medical or surgical condition that in the judgment of the investigator, in consultation with the medical monitor and/or sponsor's designee, might jeopardize the participant's safety, impact the scientific objectives of the clinical study, or interfere with participation in the clinical study. * The participant has a history of any psychiatric or cognitive impairment disorder that, in the opinion of the investigator, may interfere with study conduct. * The participant has had myotomy or denervation surgery in any affected muscles (e.g., peripheral denervation and/or spinal cord stimulation). * The participant has marked limitation on passive range of motion that suggests contractures or other structural abnormality (e.g., cervical contractures or cervical spine syndrome). * The participant has undergone deep brain stimulation (DBS) surgery (even if implant deactivated).

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Conditions

The condition(s) this trial relates to.

Dystonia dystonic disorder generalized dystonia isolated dystonia multifocal dystonia Torticollis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Isolated/primary dystonia that affects more than one region of the body

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The study's own enquiry address

    This study publishes an address for enquiries. See it below .

  2. The places running it

    9 sites. The list below names each one and where it is.

  3. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  4. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • Vima Site #002

    ACTIVE_NOT_RECRUITING

    Farmington Hills, Michigan, 48334, United States

  • Vima Site #003

    ACTIVE_NOT_RECRUITING

    Boca Raton, Florida, 33486, United States

  • Vima Site #004

    ACTIVE_NOT_RECRUITING

    Scottsdale, Arizona, 85258, United States

  • Vima Site #005

    ACTIVE_NOT_RECRUITING

    Atlanta, Georgia, 30322, United States

  • Vima Site #006

    ACTIVE_NOT_RECRUITING

    Nashville, Tennessee, 37232, United States

  • Vima Site #007

    ACTIVE_NOT_RECRUITING

    Olney, Maryland, 20832, United States

  • Vima Site #008

    ACTIVE_NOT_RECRUITING

    Miami, Florida, 33176, United States

  • Vima Site #009

    ACTIVE_NOT_RECRUITING

    Gainesville, Florida, 32611, United States

  • Vima Site #010

    ACTIVE_NOT_RECRUITING

    Aliso Viejo, California, 92656, United States

  • Vima Site #011

    ACTIVE_NOT_RECRUITING

    Richmond, Virginia, 23298, United States

  • Vima Site #012

    RECRUITING

    Houston, Texas, 77030, United States

    Contact Email: •••••@•••••

  • Vima Site #014

    ACTIVE_NOT_RECRUITING

    Albuquerque, New Mexico, 87106, United States

  • Vima Site #015

    ACTIVE_NOT_RECRUITING

    Spokane, Washington, 99202, United States

  • Vima Site #016

    ACTIVE_NOT_RECRUITING

    Memphis, Tennessee, 38157, United States

  • Vima Site #017

    COMPLETED

    Commack, New York, 11725, United States

  • Vima Site #018

    RECRUITING

    New York, New York, 10029, United States

    Contact Email: •••••@•••••

  • Vima Site #019

    ACTIVE_NOT_RECRUITING

    Englewood, Colorado, 80113, United States

  • Vima Site #020

    ACTIVE_NOT_RECRUITING

    Philadelphia, Pennsylvania, 19107, United States

  • Vima Site #021

    RECRUITING

    Charleston, South Carolina, 29407, United States

    Contact Email: •••••@•••••

  • Vima Site #022

    ACTIVE_NOT_RECRUITING

    Palo Alto, California, 94301, United States

  • Vima Site #023

    RECRUITING

    Kirkland, Washington, 98034, United States

    Contact Email: •••••@•••••

  • Vima Site #024

    ACTIVE_NOT_RECRUITING

    New York, New York, 10065, United States

  • Vima Site #025

    RECRUITING

    Dallas, Texas, 75390, United States

    Contact Email: •••••@•••••

  • Vima Site #026

    ACTIVE_NOT_RECRUITING

    Georgetown, Texas, 78628, United States

  • Vima Site #027

    RECRUITING

    Chicago, Illinois, 60611, United States

    Contact Email: •••••@•••••

  • Vima Site #028

    RECRUITING

    Sun City, Arizona, 85351, United States

    Contact Email: •••••@•••••

  • Vima Site #029

    RECRUITING

    Portland, Oregon, 97239, United States

    Contact Email: •••••@•••••

  • Vima Site #030

    RECRUITING

    Los Angeles, California, 97239, United States

    Contact Email: •••••@•••••

  • Vima Site #031

    ACTIVE_NOT_RECRUITING

    Orlando, Florida, 32825, United States

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