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Lifeline extended for boys with muscular dystrophy awaiting drug approval

NCT ID NCT03863119

Summary

This program provides continued access to the drug vamorolone for boys with Duchenne muscular dystrophy who have already participated in earlier studies. It allows them to keep receiving the medication while the drug company prepares and submits it for full regulatory approval. The program is designed to prevent a treatment gap for these patients who cannot join other trials.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Alberta's Children Hospital

    AVAILABLE

    Calgary, Alberta, T3B 6A8, Canada

    Contact

    Contact Phone: •••-•••-••••

  • British Columbia Children's Hospital

    AVAILABLE

    Vancouver, British Columbia, V6H 3N1, Canada

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • Children's Hospital of Eastern Ontario

    AVAILABLE

    Ottawa, Ontario, K1H 8L1, Canada

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Duke University

    AVAILABLE

    Durham, North Carolina, 27710, United States

    Contact

  • Montreal Childrens Hospital

    AVAILABLE

    Montreal, Quebec, H4A 3J1, Canada

    Contact Email: •••••@•••••

    Contact

  • Nemours Children's Hospital

    AVAILABLE

    Orlando, Florida, 32827, United States

    Contact

  • Schneider Chidlren's Medical Center

    AVAILABLE

    Petah Tikva, 4920435, Israel

    Contact

  • Seattle Children's

    AVAILABLE

    Seattle, Washington, 98105, United States

    Contact

  • The Hospital for Sick Children

    AVAILABLE

    Toronto, Ontario, M5G 1X8, Canada

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of California Davis

    AVAILABLE

    Davis, California, 95616, United States

    Contact

  • University of Texas Southwestern Medical Center

    AVAILABLE

    Dallas, Texas, 75207, United States

    Contact

  • urie Children's Hospital of Chicago

    AVAILABLE

    Chicago, Illinois, 60611, United States

    Contact

Conditions

Explore the condition pages connected to this study.