First-Ever health survey created for down syndrome community
NCT ID NCT04631237
Summary
This study created a new survey tool to measure health in people with Down syndrome, since existing tools don't work well for this population. Researchers worked with 542 caregivers of people with Down syndrome to develop and test the survey. The goal is to create a reliable way to measure health that can be used in future research and clinical care to identify gaps and improve services.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Locations
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
Conditions
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