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The forgotten siblings: can two surveys give voice to children living beside a brother or sister with cancer?

NCT ID NCT06854822

NEW Knowledge-focused Sponsor: Ersta Sköndal University College Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Sep 21, 2026 · Last updated Sep 21, 2026

Summary

Brothers and sisters of children with cancer often face loneliness, fear, and grief, yet Swedish clinics have no standard way to measure what they need. This study translates two questionnaires into Swedish: the Sibling Cancer Needs Instrument, which asks about information, support, and family understanding, and the PG-12, which screens for prolonged grief during a sibling's illness. Researchers will adapt the wording with help from experts and about 10 siblings, then ask roughly 200 siblings aged 12 to 24 to complete a web survey. The goal is to check whether the Swedish versions are reliable and valid enough for clinics to use.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
two questionnaires: the Sibling Cancer Needs Instrument and the Prolonged Grief Disorder PG-12 scale, translated into Swedish
What this could lead to
If the Swedish versions prove reliable, clinics and schools could use them to spot siblings who need support and to identify those at risk of prolonged grief before a loss occurs.
What could go wrong
This is a questionnaire study, not a treatment, so it cannot show that any support helps. A translated survey may not work the same way in Swedish as in its original language, and 200 siblings is a modest sample for testing a 45-item tool.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 200 people

The number the study aims to enrol. It can still change while the study runs.

Started

Nov 2025

Expected to finish

Mar 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

All siblings that have a brother or sister with cancer 0-17 years.

Ages

12 to 24 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Age: 12-24 years * Have a brother or sister with childhood cancer * Swedish speaking siblings Exclusion Criteria: -Bereaved siblings

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Conditions

The condition(s) this trial relates to.

childhood malignant neoplasm neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Childhood cancer Psychosocial functioning Siblings

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Marie Cederschiöld Unicersity College

    RECRUITING

    Stockholm, Sweden

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