Massive 5,000-Person study tracks key cystic fibrosis biomarker
NCT ID NCT03350828
Summary
This study aims to understand how a key sweat test measurement changes in people with cystic fibrosis who are taking approved modulator drugs. It will enroll about 5,000 participants who have been on their medication for at least 3 months for a single visit to collect a sweat sample. The goal is to see how changes in this sweat test relate to patients' long-term health outcomes, using data from the national CF registry.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, 60611, United States
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Baylor College of Medicine
Houston, Texas, 77030, United States
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
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Children's Healthcare of Atlanta and Emory University
Atlanta, Georgia, 30322, United States
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Children's Hospital Medical Center of Akron
Akron, Ohio, 44308, United States
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Children's Hospital of Michigan
Detroit, Michigan, 48201, United States
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Children's Hospital of Pittsburgh of UPMC
Pittsburgh, Pennsylvania, 15224, United States
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Children's Hospital of Wisconsin
Milwaukee, Wisconsin, 53226, United States
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Children's Mercy Kansas City
Kansas City, Missouri, 64108, United States
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Childrens Hospital Los Angeles
Los Angeles, California, 90027, United States
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
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Dartmouth Hitchcock Medical Center
Lebanon, New Hampshire, 03756, United States
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Emory University
Atlanta, Georgia, 30327, United States
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Helen DeVos Children's Hospital
Grand Rapids, Michigan, 49503, United States
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Hershey Medical Center Pennsylvania State University
Hershey, Pennsylvania, 17033, United States
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John Hopkins Hospital
Baltimore, Maryland, 21287, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Medical University of South Carolina
Charleston, South Carolina, 29425, United States
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National Jewish Health
Denver, Colorado, 80206, United States
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Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
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Nemours Children's Clinic - Pensacola
Pensacola, Florida, 32514, United States
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New York Medical College at Westchester Medical Center
Valhalla, New York, 10595, United States
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Oregon Health Sciences University
Portland, Oregon, 97239, United States
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Primary Children's Cystic Fibrosis Center
Salt Lake City, Utah, 84113, United States
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Rainbow Babies and Children's Hospital/University Hospitals Cleveland Medical Center
Cleveland, Ohio, 44106, United States
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Riley Hospital for Children
Indianapolis, Indiana, 46202, United States
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SSM Health Cardinal Glennon Children's Hospital
St Louis, Missouri, 63104, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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St. Louis Children's Hospital
St Louis, Missouri, 63110, United States
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The Children's Hospital Alabama, University of Alabama at Birmingham
Birmingham, Alabama, 35233, United States
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The Cystic Fibrosis Center of Western New York
Buffalo, New York, 14203, United States
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The Minnesota Cystic Fibrosis Center
Minneapolis, Minnesota, 55455, United States
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The Nemours Children's Clinic - Orlando
Orlando, Florida, 32827, United States
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Toledo Children's Hospital
Toledo, Ohio, 43606, United States
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University of Arkansas for Medical Sciences
Little Rock, Arkansas, 72205, United States
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University of California San Diego
La Jolla, California, 92093, United States
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University of Chicago
Chicago, Illinois, 60637, United States
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University of Florida
Gainesville, Florida, 32610, United States
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University of Kansas Medical Center
Kansas City, Kansas, 66160, United States
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University of Kentucky
Lexington, Kentucky, 40506, United States
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University of Michigan, Michigan Medicine
Ann Arbor, Michigan, 48109, United States
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University of North Carolina at Chapel Hill
Chapel Hill, North Carolina, 27517, United States
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University of Tennessee CF Care and Research Center
Memphis, Tennessee, 38103, United States
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University of Texas Southwestern / Children's Health
Dallas, Texas, 75207, United States
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University of Texas Southwestern Medical Center
Dallas, Texas, 75390, United States
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University of Washington Medical Center
Seattle, Washington, 98195, United States
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University of Wisconsin
Madison, Wisconsin, 53792, United States
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Vanderbilt Children's Hospital
Nashville, Tennessee, 37232, United States
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West Virginia University - Morgantown
Morgantown, West Virginia, 26506, United States
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Yale University School of Medicine
New Haven, Connecticut, 06520, United States
Conditions
Explore the condition pages connected to this study.