New study tracks health of CF parents in age of breakthrough drugs
NCT ID NCT06296394
First seen Nov 11, 2025 · Last updated May 23, 2026 · Updated 24 times
Summary
This study follows 146 people with cystic fibrosis who recently became first-time parents to see how parenthood impacts their lung health and mental well-being. Participants complete surveys about stress, mood, and caregiving responsibilities over five years. The goal is to understand whether factors like depression or parental burden speed up lung function decline, especially for those taking modern CF medications.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Boston Children's Hospital/Brigham and Women's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
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Indiana University
RECRUITINGIndianapolis, Indiana, 46202, United States
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Johns Hopkins University
RECRUITINGBaltimore, Maryland, 21218, United States
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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Medical University of South Carolina
RECRUITINGCharleston, South Carolina, 29425, United States
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National Jewish Health
RECRUITINGDenver, Colorado, 80206, United States
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Northwestern University
NOT_YET_RECRUITINGEvanston, Illinois, 60208, United States
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Oregon Health and Science University
RECRUITINGPortland, Oregon, 97239, United States
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University of Alabama-Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66160, United States
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University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55455, United States
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University of North Carolina
RECRUITINGChapel Hill, North Carolina, 27599, United States
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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University of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15213, United States
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University of Texas-Southwestern
RECRUITINGDallas, Texas, 75390, United States
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University of Washington
RECRUITINGSeattle, Washington, 98195, United States
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Washington University School of Medicine
RECRUITINGSt Louis, Missouri, 63110, United States
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Conditions
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