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Who knows best? study compares views on life with cerebral palsy

NCT ID NCT07211594

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This completed study looked at 97 adolescents with cerebral palsy (ages 11-18) to see how their own ratings of health-related quality of life matched those of their caregivers and physiotherapists. Everyone filled out a questionnaire about daily activities, school, movement, pain, fatigue, eating, and speech. The goal was to find out if different perspectives agree, which can help improve care and communication.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

97 people

The number who actually took part.

Started

Oct 2018

Finished

Feb 2020

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

The demographic information such as weight, height, sex, age etc. were recorded for adolescents, as well as the age and educational status of the caregivers. Gross Motor Function Classification System (GMFCS-E\&R) were used to classify the adolescents' gross motor function. The hand function of adolescents in daily activities was classified with The Manual Ability Classification System (MACS), and the communication of adolescents was classified with the Communication Function Classification System (CFCS). Clinicians and researchers used these classification systems to grade functional capacity systems and constitute a common language to describe function.

Ages

11 to 18 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * being diagnosed with CP of all clinical types, * aged 11-18 years, * who can understand and answer the questions. Exclusion Criteria: * Adolescents who did not attend regular therapy sessions * Physiotherapists who performed therapy sessions with the adolescent for less than four weeks

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Hacettepe University

    Ankara, Turkey (Türkiye)

More trials for these conditions

Other studies related to the condition(s) this trial covers.