Who knows best? study compares views on life with cerebral palsy
NCT ID NCT07211594
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This completed study looked at 97 adolescents with cerebral palsy (ages 11-18) to see how their own ratings of health-related quality of life matched those of their caregivers and physiotherapists. Everyone filled out a questionnaire about daily activities, school, movement, pain, fatigue, eating, and speech. The goal was to find out if different perspectives agree, which can help improve care and communication.
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Study facts
What this study's own registry entry says, in plain language.
- Participants
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97 people
The number who actually took part.
- Started
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Oct 2018
- Finished
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Feb 2020
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
The demographic information such as weight, height, sex, age etc. were recorded for adolescents, as well as the age and educational status of the caregivers. Gross Motor Function Classification System (GMFCS-E\&R) were used to classify the adolescents' gross motor function. The hand function of adolescents in daily activities was classified with The Manual Ability Classification System (MACS), and the communication of adolescents was classified with the Communication Function Classification System (CFCS). Clinicians and researchers used these classification systems to grade functional capacity systems and constitute a common language to describe function.
- Ages
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11 to 18 years
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
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Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * being diagnosed with CP of all clinical types, * aged 11-18 years, * who can understand and answer the questions. Exclusion Criteria: * Adolescents who did not attend regular therapy sessions * Physiotherapists who performed therapy sessions with the adolescent for less than four weeks
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hacettepe University
Ankara, Turkey (Türkiye)
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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