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Cure My Disease

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Massive registry launched to track Kids' rheumatic disease treatments

NCT ID NCT02418442

Knowledge-focused Sponsor: Duke University Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Aug 28, 2026 · Updated 2 times

Summary

This observational study follows up to 20,000 children and young adults with pediatric-onset rheumatic diseases, such as juvenile idiopathic arthritis. Researchers collect data on treatments, safety, and long-term outcomes to better understand these conditions. The registry does not test a new drug but gathers real-world information to guide future care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 20,000 people

The number the study aims to enrol. It can still change while the study runs.

Start date

Jul 2015

Expected to finish

Dec 2028

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Children with pediatric rheumatic diseases enrolled from participating CARRA sites.

Ages

Up to 21 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: 1. Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A). 2. Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures. 3. Subject and/or parent/legal guardian is willing to be contacted in the future by study staff. Exclusion Criteria: 1\. Greater than 21 years of age at the time of enrollment.

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Get notified about this study

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Conditions

The condition(s) this trial relates to.

arthritic joint disease juvenile idiopathic arthritis negative rheumatoid factor polyarthritis psoriatic arthritis rheumatic disorder systemic lupus erythematosus

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Rheumatic joint disease

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    71 sites in 3 countries. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Akron Children's Hospital

    RECRUITING

    Akron, Ohio, 44308, United States

  • Albany Medical College

    RECRUITING

    Albany, New York, 122089, United States

  • Ann & Robert H. Lurie Children's Hospital of Chicago

    RECRUITING

    Chicago, Illinois, 60614, United States

  • Bay State Medical Center

    TERMINATED

    Springfield, Massachusetts, 01105, United States

  • Baylor College of Medicine Pediatric Immunology Allergy Rheumatology

    RECRUITING

    Houston, Texas, 77030, United States

  • Boston Children's Hospital

    RECRUITING

    Boston, Massachusetts, 02115, United States

  • Children's Hospital Of Wisconsin

    RECRUITING

    Wauwatosa, Wisconsin, 53226, United States

  • Children's Hospital at Montefiore

    RECRUITING

    New York, New York, 10467, United States

  • Children's Hospital of Los Angeles

    NOT_YET_RECRUITING

    Los Angeles, California, 90027, United States

  • Children's Hospital of Philadelphia

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

  • Children's Hospital of Pittsburgh UPMC

    RECRUITING

    Pittsburgh, Pennsylvania, 15224, United States

  • Children's Hospital of the King's Daughters

    RECRUITING

    Norfolk, Virginia, 23507, United States

  • Children's Mercy Hospital

    RECRUITING

    Kansas City, Missouri, 64108, United States

  • Childrens National Medical Center

    RECRUITING

    Washington D.C., District of Columbia, 20010, United States

  • Cincinnati Children's Hospital Medical Center

    RECRUITING

    Cincinnati, Ohio, 45229, United States

  • Cleveland Clinic Foundation

    RECRUITING

    Cleveland, Ohio, 44195, United States

  • Cohen Children's Medical Center of New York

    RECRUITING

    Lake Success, New York, 11042, United States

  • Columbia University Medical Center

    RECRUITING

    New York, New York, 10032, United States

  • Connecticut Children's Medical Center

    RECRUITING

    Hartford, Connecticut, 06106, United States

  • Duke Children's Hospital & Health Center

    RECRUITING

    Durham, North Carolina, 27710, United States

  • Emory Children's Center

    RECRUITING

    Atlanta, Georgia, 30322, United States

  • Georgia Regents University Medical Center

    RECRUITING

    Augusta, Georgia, 30912, United States

  • Goryeb Children's Hospital

    RECRUITING

    Morristown, New Jersey, 07960, United States

  • Hackensack University Medical Center

    RECRUITING

    Hackensack, New Jersey, 07601, United States

  • Hasbro Children's Hospital

    RECRUITING

    Providence, Rhode Island, 02903, United States

  • Helen Devos Children's Hospital

    RECRUITING

    Grand Rapids, Michigan, 49503, United States

  • Hospital for Special Surgery

    RECRUITING

    New York, New York, 10021, United States

  • IRCCS Ospedale Pediatrico Bambino Gesu (OPBG)

    NOT_YET_RECRUITING

    Rome, Italy

  • IWK Health Center

    RECRUITING

    Halifax, Nova Scotia, NS B3K 6R8, Canada

  • Indiana University School of Medicine

    RECRUITING

    Indianapolis, Indiana, 46202, United States

  • Johns Hopkins All Children's Hospital

    RECRUITING

    St. Petersburg, Florida, 33701, United States

  • Levine Children's Hospital / Carolinas Medical Center

    RECRUITING

    Charlotte, North Carolina, 28203, United States

  • Massachusetts General Hospital for Children

    RECRUITING

    Boston, Massachusetts, 02114, United States

  • Mattel Children's Hospital at University of California Los Angeles

    RECRUITING

    Los Angeles, California, 90095, United States

  • Mayo Clinic

    RECRUITING

    Rochester, Minnesota, 55905, United States

  • Medical University of South Carolina Children's Hospital

    RECRUITING

    Charleston, South Carolina, 29425, United States

  • Metrohealth Medical Center

    RECRUITING

    Cleveland, Ohio, 44109, United States

  • Monroe Carrell Jr. Children's Hospital at Vanderbilt

    RECRUITING

    Nashville, Tennessee, 37232, United States

  • Nationwide Children's Hospital

    RECRUITING

    Columbus, Ohio, 43205, United States

  • Nemours Children's Hospital

    RECRUITING

    Orlando, Florida, 32827, United States

  • New York University Langone Medical Center

    TERMINATED

    New York, New York, 10016, United States

  • Nicklaus Children's Hospital

    TERMINATED

    Miami, Florida, 33155, United States

  • Penn State Children's Hospital

    RECRUITING

    Hershey, Pennsylvania, 17033, United States

  • Phoenix Children's Hospital

    RECRUITING

    Phoenix, Arizona, 85254, United States

  • Rady Children's Hospital San Diego

    RECRUITING

    San Diego, California, 92123, United States

  • Randall Children's Hospital at Legacy Emanuel

    RECRUITING

    Portland, Oregon, 97227, United States

  • Robert Wood Johnson Medical School

    RECRUITING

    New Brunswick, New Jersey, 08901, United States

  • Saint Christopher's Hospital for Children

    RECRUITING

    Philadelphia, Pennsylvania, 19134, United States

  • Saint Louis Children's Hospital

    RECRUITING

    St Louis, Missouri, 63110, United States

  • Saint Louis University School of Medicine

    TERMINATED

    St Louis, Missouri, 63104, United States

  • San Jorge Children's Hospital

    WITHDRAWN

    San Juan, 00912, Puerto Rico

  • Sanford Health

    RECRUITING

    Fargo, North Dakota, 58122, United States

  • Schneider Children's Medical Center of Israel

    TERMINATED

    Petah Tikva, 49202-35, Israel

  • Seattle Children's Hospital

    RECRUITING

    Seattle, Washington, 98105, United States

  • Stanford University Medical Center

    RECRUITING

    Palo Alto, California, 94304, United States

  • The Children's Hospital of Colorado

    RECRUITING

    Aurora, Colorado, 80045, United States

  • The Hospital for Sick Children

    RECRUITING

    Toronto, Ontario, Canada

  • The Pediatric Specialty Center at Saint Barnabas

    RECRUITING

    West Orange, New Jersey, 07052, United States

  • The University of Iowa Hospitals and Clinics (University of Iowa Children's Hospital)

    RECRUITING

    Iowa City, Iowa, 52242, United States

  • Tufts Medical Center

    RECRUITING

    Boston, Massachusetts, 02111, United States

  • UH Rainbox Babies and Children's Hospital

    TERMINATED

    Cleveland, Ohio, 44106, United States

  • University of Alabama at Birmingham

    RECRUITING

    Birmingham, Alabama, 35233, United States

  • University of Calgary - Alberta Children's Hospital

    RECRUITING

    Calgary, Alberta, AB T38 6A8, Canada

  • University of California at San Francisco Medical Center

    RECRUITING

    San Francisco, California, 94143, United States

  • University of Chicago Medical Center

    RECRUITING

    Chicago, Illinois, 60637, United States

  • University of Florida - Shand's Children's Hospital

    RECRUITING

    Gainesville, Florida, 32608, United States

  • University of Illinois at Chicago

    WITHDRAWN

    Chicago, Illinois, 60607, United States

  • University of Kansas Medical Center

    TERMINATED

    Kansas City, Kansas, 66160, United States

  • University of Louisville Schoole of Medicine

    RECRUITING

    Louisville, Kentucky, 40202, United States

  • University of Manitoba - Children's Hospital of Manitoba

    RECRUITING

    Winnipeg, Manitoba, R3E 3P4, Canada

  • University of Michigan

    RECRUITING

    Ann Arbor, Michigan, 48109, United States

  • University of Minnesota

    RECRUITING

    Minneapolis, Minnesota, 55454, United States

  • University of Mississippi Medical Center

    RECRUITING

    Jackson, Mississippi, 39216, United States

  • University of North Carolina at Chapel Hill

    RECRUITING

    Chapel Hill, North Carolina, 27599, United States

  • University of Rochester

    RECRUITING

    Rochester, New York, 14642, United States

  • University of Texas Southwestern Medical Center Dallas

    RECRUITING

    Dallas, Texas, 75219, United States

  • University of Utah Hospitals and Clinics (Primary Children's Hospital)

    RECRUITING

    Salt Lake City, Utah, 84113, United States

  • University of Vermont Medical Center

    RECRUITING

    Burlington, Vermont, 05401, United States

  • University of Wisconsin, American Family Children's Hospital

    RECRUITING

    Madison, Wisconsin, 53792, United States

  • Wake Forest Baptist Brenner Children's Hospital

    RECRUITING

    Winston-Salem, North Carolina, 27012, United States

  • West Michigan Rheumatology

    TERMINATED

    Grand Rapids, Michigan, 49546, United States

  • Yale University

    TERMINATED

    New Haven, Connecticut, 06519, United States

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