Could a Carb-Heavy diet tame a rare blood disorder?
NCT ID NCT06273644
First seen Apr 01, 2026 · Last updated Jun 23, 2026 · Updated 16 times
Summary
This study is testing whether eating a diet rich in carbohydrates (60-65% of daily calories) can help people with acute intermittent porphyria (AIP), a rare genetic disorder that causes severe attacks of pain and other symptoms. Fifty adults with AIP will try two different diet plans for four weeks each, with a break in between. Researchers will measure changes in urine markers of disease activity, symptoms, and overall health to see if a high-carb diet offers any benefit.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Locations
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Nordland Hospital Trust
RECRUITINGBodø, Nordland, 8092, Norway
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Norrland University Hospital
RECRUITINGUmeå, Sweden
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Contact
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Studieenheten, Akademiskt Specialistcentrum, Stockholm läns sjukvårdsområde, Region Stockholm
RECRUITINGStockholm, Sweden
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Contact Phone: •••-•••-•••• Email: •••••@•••••
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
Carbohydrate-rich diet (60-65% of energy from carbs vs. 40-45%)
What this could lead to
If it works, this could point toward a simple dietary treatment to manage acute intermittent porphyria symptoms and reduce flare-ups.
What could go wrong
This is a small, early-stage trial with only 50 participants. The diet change is modest, and results may not be dramatic or apply to everyone. It's not a cure, just a potential way to control the condition.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.