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New PET scan could spot hidden tumors in rare genetic disease

NCT ID NCT07171905

First seen Nov 01, 2025 · Last updated May 25, 2026 · Updated 28 times

Summary

This study tests a special PET scan that uses a radioactive tracer to find tumors in people with Von Hippel-Lindau (VHL) disease, a genetic condition that raises cancer risk. About 38 adults will receive one dose of the tracer and then have a PET/CT scan. The goal is to see if this scan can detect tumors more accurately than standard methods like MRI, and to explore if it could guide future treatments.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • IRCCS Ospedale San Raffaele

    RECRUITING

    Milan, Italia, 20132, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.