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Scientists shine light on Kids' brains to unlock secrets of rare diseases

NCT ID NCT05642221

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 24 times

Summary

This study tested two safe, light-based brain scanning methods (fNIRS and DCS) in children with rare neurocognitive disorders like Niemann-Pick disease and Smith-Lemli-Opitz syndrome, as well as healthy volunteers. The goal was to see if these scans could measure brain activity without using radiation. Researchers hope these tools can help study brain function in kids more comfortably and safely.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.