New survey aims to uncover hidden needs in bladder cancer care
NCT ID NCT06412874
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This completed study involved 93 adults with stage 4 incurable bladder cancer. Participants completed surveys and focus groups to identify their supportive care and educational needs. The goal was to design a screening tool to help healthcare teams better address these needs in the future.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- What this could lead to
- If successful, this could lead to a standard screening tool that helps doctors better understand and address the unmet needs of advanced bladder cancer patients.
- What could go wrong
- This is a small, completed observational study focused on developing a survey, not testing a treatment. The tool may not be widely adopted or may not improve outcomes as hoped.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Participants
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93 people
The number who actually took part.
- Started
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May 2025
- Finished
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Aug 2025
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Bladder cancer survivors
- Ages
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18 to 89 years
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Patients are eligible to participate if they are diagnosed with Stage 4 incurable locally advanced or metastatic bladder cancer * between 18 years and older (18-89 years) * have initiated any systemic treatment for advanced urothelial carcinoma * speak English speaking and are able to consent. Exclusion Criteria: * Have a diagnosis of another advanced cancer that has required systemic therapy * Or have any condition that, in the opinion of the investigator, would compromise the well- being of the subject or the study or prevent the subject from meeting or performing study requirements.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Icahn School of Medicine at Mount Sinai
New York, New York, 10029, United States
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