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New study aims to uncover Parkinson's genetic secrets in black communities

NCT ID NCT06719583

Knowledge-focused Sponsor: Michael J. Fox Foundation for Parkinson's Research Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

BLAAC PD is a research study that aims to understand what Parkinson's disease looks like for Black and African American communities. Researchers will collect genetic and health information from 2,000 participants across the U.S. to explore risk factors and genetic causes of Parkinson's in this population. The study is part of the Global Parkinson's Genetics Program.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could reveal genetic factors that explain why Parkinson's affects Black and African American communities differently, pointing toward more personalized treatments.
What could go wrong
This is an observational study, not a treatment trial. It may take years to yield actionable results, and findings might not apply to all populations.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 2,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Nov 2020

Expected to finish

Dec 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Black Americans and African Americans with Parkinson's Disease or without a history of Parkinson's (control volunteers).

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria for Control Participants: * Ability to provide informed consent * Age 50 years or older * Self-identify as Black or African American Exclusion Criteria for Control Participants: * Diagnosis of Parkinson's Disease and/or neurological condition * Familial history of PD and/or neurodegenerative or psychiatric conditions * Unknown family history of PD and/or neurodegenerative or psychiatric conditions * Any conditions that, in the investigator's opinion, preclude the individual's ability to carry out study activities * If submitting a saliva sample, nothing by mouth (food, drink, gum, tobacco, or smoking) for 30 minutes prior to sample collection Inclusion Criteria for Participants with a Diagnosis of PD: * Ability to provide informed consent * Age 18 years or older * Self-identify as Black or African American * Meet the Movement Disorder Society's clinical diagnostic criteria for Parkinson's disease Exclusion Criteria for Participants with a Diagnosis of PD: \- If submitting a saliva sample, nothing by mouth (food, drink, gum, tobacco, or smoking) for 30 minutes prior to sample collection

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Conditions

The condition(s) this trial relates to.

Parkinson disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Parkinson disease

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    11 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Kaiser Permanente Midatlantic States

    ACTIVE_NOT_RECRUITING

    Rockville, Maryland, 20852, United States

  • Louisiana State University Health Sciences Center Shreveport

    RECRUITING

    Shreveport, Louisiana, 71103, United States

  • Medical University of South Carolina

    RECRUITING

    Charleston, South Carolina, 29425, United States

  • Ochsner Clinic Foundation

    RECRUITING

    New Orleans, Louisiana, 70121, United States

  • Rush University

    RECRUITING

    Chicago, Illinois, 60612, United States

  • University Hospitals Cleveland Medical Center

    RECRUITING

    Cleveland, Ohio, 44106, United States

  • University of Alabama at Birmingham

    RECRUITING

    Birmingham, Alabama, 35233, United States

  • University of Chicago

    RECRUITING

    Chicago, Illinois, 60637, United States

  • University of Florida

    RECRUITING

    Gainesville, Florida, 32608, United States

  • University of Maryland

    RECRUITING

    Baltimore, Maryland, 21201, United States

  • University of Texas Health Science Center, Houston

    RECRUITING

    Houston, Texas, 77030, United States

  • Washington University in St. Louis

    RECRUITING

    St Louis, Missouri, 63119, United States

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