Researchers dig into medical records to unlock better outcomes for kids with rare liver disease
NCT ID NCT06184971
First seen Apr 07, 2026 · Last updated Jun 19, 2026 · Updated 11 times
Summary
This study looks back at the medical records of 150 children with biliary atresia, a rare liver condition, treated between 2012 and 2021. Researchers want to find out which treatments and factors lead to better survival and fewer liver transplants. The goal is to use this information to improve care for future patients.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Albany Medical Center/Bernard & Millie Duke's Children's Hospital
Albany, New York, 12208, United States
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Baystate
Springfield, Massachusetts, 01199, United States
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
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Connecticut Children's Medical Center
Hartford, Connecticut, 06106, United States
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Dartmouth-Hitchcock Medical Center
Lebanon, New Hampshire, 03756, United States
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Eastern Maine Medical Center
Bangor, Maine, 04401, United States
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John R. Oishei Children's Hospital
Buffalo, New York, 14203, United States
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Maine Medical Center
Portland, Maine, 04102, United States
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Massachusetts General Hospital for Children
Boston, Massachusetts, 02114, United States
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Rhode Island Hospital/Hasbro Children's Hospital
Providence, Rhode Island, 02905, United States
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SUNY Upstate Medical University
Syracuse, New York, 13210, United States
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UMass Memorial Medical Center
Worcester, Massachusetts, 01605, United States
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University of Rochester Medical Center/Golisano Children's Hospital
Rochester, New York, 14642, United States
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Yale University
New Haven, Connecticut, 06510, United States
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.