New study aims to unlock secrets of rare, deadly batten disease
NCT ID NCT03307304
First seen Nov 01, 2025 · Last updated May 22, 2026 · Updated 32 times
Summary
This study is for people with Batten disease (CLN3) and their family members. Researchers want to collect samples like blood, spinal fluid, and skin, and track symptoms over time. The goal is to find biological markers that can be used to measure the effects of future treatments. No experimental therapy is given; this is purely an observation and data-gathering study.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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