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Researchers dig into 150 medical records to unlock secrets of rare liver disease

NCT ID NCT06184971

First seen Apr 07, 2026 · Last updated May 23, 2026 · Updated 7 times

Summary

This study looks back at the medical records of 150 children with biliary atresia, a rare liver disease, treated between 2012 and 2021. Researchers want to find out which treatments and factors lead to better outcomes, such as avoiding liver transplants. The goal is to use this information to improve care for future patients.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Albany Medical Center/Bernard & Millie Duke's Children's Hospital

    Albany, New York, 12208, United States

  • Baystate

    Springfield, Massachusetts, 01199, United States

  • Boston Children's Hospital

    Boston, Massachusetts, 02115, United States

  • Connecticut Children's Medical Center

    Hartford, Connecticut, 06106, United States

  • Dartmouth-Hitchcock Medical Center

    Lebanon, New Hampshire, 03756, United States

  • Eastern Maine Medical Center

    Bangor, Maine, 04401, United States

  • John R. Oishei Children's Hospital

    Buffalo, New York, 14203, United States

  • Maine Medical Center

    Portland, Maine, 04102, United States

  • Massachusetts General Hospital for Children

    Boston, Massachusetts, 02114, United States

  • Rhode Island Hospital/Hasbro Children's Hospital

    Providence, Rhode Island, 02905, United States

  • SUNY Upstate Medical University

    Syracuse, New York, 13210, United States

  • UMass Memorial Medical Center

    Worcester, Massachusetts, 01605, United States

  • University of Rochester Medical Center/Golisano Children's Hospital

    Rochester, New York, 14642, United States

  • Yale University

    New Haven, Connecticut, 06510, United States

Conditions

Explore the condition pages connected to this study.