Alport patients needed for landmark registry to speed up research
NCT ID NCT06526741
First seen Apr 26, 2026 · Last updated May 23, 2026 · Updated 5 times
Summary
This study is a patient registry for people living with Alport syndrome in the US. Participants share their health history through a secure online portal to help researchers better understand the disease and support future clinical trials. The goal is to enroll 750 participants of any age with a confirmed diagnosis.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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On-line only: https://asfalportpatientregistry.healthie.net
RECRUITINGScottsdale, Arizona, 85261, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
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