New study aims to unlock clues about rare genetic lung disease
NCT ID NCT05297812
First seen Jan 18, 2026 · Last updated May 23, 2026 · Updated 14 times
Summary
This study follows 286 adults with Alpha-1 Antitrypsin Deficiency, a genetic condition that can damage the lungs and liver. Researchers use CT scans and blood tests to track how lung density changes over three years. The goal is to find better ways to measure disease progression, which could help design future treatments.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Boston University
Boston, Massachusetts, 02118, United States
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Columbia University
New York, New York, 10032, United States
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Medical University of South Carolina
Charleston, South Carolina, 29425, United States
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National Jewish Health
Denver, Colorado, 80206, United States
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University of Alabama at Birmingham
Birmingham, Alabama, 35233, United States
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University of California - Los Angeles
Los Angeles, California, 90095, United States
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University of Chicago
Chicago, Illinois, 60637, United States
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University of North Carolina
Chapel Hill, North Carolina, 27514, United States
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University of Utah
Salt Lake City, Utah, 84108, United States
Conditions
Explore the condition pages connected to this study.