Major registry launched to track rare bone growth disorder
NCT ID NCT02597881
Summary
This study is creating a national database to collect health information from people with achondroplasia, a genetic condition that affects bone growth. Researchers will use this registry to track how people with achondroplasia grow over time and what treatments they receive. The goal is to gather enough data to answer important questions about health outcomes and care options for this rare condition.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Johns Hopkins University
RECRUITINGBaltimore, Maryland, 21205, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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