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The International Fop Association

Clinical trials sponsored by The International Fop Association, explained in plain language.

Trials to join now! 1

Worldwide FOP database launches to unlock secrets of rare bone disorder

Knowledge-focused Recruiting now

This study creates a global online registry for people with Fibrodysplasia Ossificans Progressiva (FOP), a rare condition where soft tissues turn into bone. Participants and their doctors can securely report symptoms, flare-ups, and mobility changes over time. The goal is to gath…

Sponsor: The International FOP Association • Aim: Knowledge-focused

Last updated May 18, 2026 12:00 UTC