SUPPORTIVE CARE NEEDS OF CAREGIVERS

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Study asks: what do caregivers of rare disease patients really need?

Knowledge-focused Recruiting now

This study aims to understand the support needs of family and friends who provide unpaid care for people with rare histiocytic diseases like Erdheim-Chester disease. Researchers will survey 250 caregivers to learn about their challenges and quality of life. The goal is to gather …

Matched conditions: SUPPORTIVE CARE NEEDS OF CAREGIVERS

Sponsor: Memorial Sloan Kettering Cancer Center • Aim: Knowledge-focused

Last updated Mar 17, 2026 13:08 UTC

SUPPORTIVE CARE NEEDS OF CAREGIVERS

Get alerted when new SUPPORTIVE CARE NEEDS OF CAREGIVERS trials appear

Study asks: what do caregivers of rare disease patients really need?