LYMPHANGIOLEIOMYOMATOSIS
Clinical trials for LYMPHANGIOLEIOMYOMATOSIS explained in plain language.
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Could a leukemia drug help treat a rare lung disease? new trial aims to find out
Disease control Recruiting nowThis study tests the long-term safety of imatinib, a drug already approved for leukemia, in women with lymphangioleiomyomatosis (LAM), a rare cystic lung disease. About 20 women aged 18-64 will receive either imatinib or a placebo for 6 months. The goal is to see if imatinib is s…
Matched conditions: LYMPHANGIOLEIOMYOMATOSIS
Phase: PHASE1 • Sponsor: Columbia University • Aim: Disease control
Last updated May 26, 2026 03:49 UTC
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Which inhaler works best for rare lung disease? new study aims to find out
Symptom relief Recruiting nowThis study tests whether a nebulizer or a standard inhaler (MDI) delivers albuterol better to improve lung function in women with LAM, a rare progressive lung disease. About 100 women with LAM and breathing problems will stay overnight for 3 days to try each method. The goal is t…
Matched conditions: LYMPHANGIOLEIOMYOMATOSIS
Phase: PHASE1, PHASE2 • Sponsor: National Heart, Lung, and Blood Institute (NHLBI) • Aim: Symptom relief
Last updated May 18, 2026 12:13 UTC
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New registry tracks pregnancy in women with rare genetic conditions
Knowledge-focused Recruiting nowThis study collects information from pregnant women with Tuberous Sclerosis Complex (TSC) or Lymphangioleiomyomatosis (LAM) and their babies. It aims to understand how these conditions affect pregnancy and how medications like mTOR inhibitors are used. The goal is to improve care…
Matched conditions: LYMPHANGIOLEIOMYOMATOSIS
Sponsor: David M. Ritter • Aim: Knowledge-focused
Last updated May 26, 2026 03:49 UTC
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Massive TSC data & sample collection launches to fuel future discoveries
Knowledge-focused Recruiting nowThis study is creating a large collection of blood, DNA, and tissue samples along with health information from up to 5,000 people with tuberous sclerosis complex (TSC) or a related condition called LAM. Researchers will use these samples and data to better understand how TSC affe…
Matched conditions: LYMPHANGIOLEIOMYOMATOSIS
Sponsor: National Tuberous Sclerosis Association • Aim: Knowledge-focused
Last updated May 26, 2026 03:44 UTC
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Scientists seek clues to mysterious lung disease affecting young women
Knowledge-focused Recruiting nowThis study aims to understand why a rare lung disease called LAM destroys lung tissue in women of childbearing age. Researchers will analyze cells, proteins, and genes from up to 2,000 participants to find the root causes. The goal is to pave the way for more effective treatments…
Matched conditions: LYMPHANGIOLEIOMYOMATOSIS
Sponsor: National Heart, Lung, and Blood Institute (NHLBI) • Aim: Knowledge-focused
Last updated May 26, 2026 03:43 UTC