Sturge-Weber syndrome

MONDO:0008501

Sturge-Weber syndrome (SWS) is a rare congenital neurocutaneous disorder characterized by facial capillary malformations and/or cerebral and ocular ipsilateral vascular malformations that result in variable degrees of ocular and neurological anomalies.

Also known as: SWS, Sturge Weber Syndrome, Sturge Weber syndrome, Sturge-Weber disease, Sturge-Weber syndrome, Sturge-Weber syndrome, somatic, mosaic, Sturge-Weber-Dimitri syndrome, Sturge-Weber-Krabbe angiomatosis

8 clinical trials for this condition and its sub-types, 8 tagged with Sturge-Weber syndrome itself.

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Where it sits in the disease tree

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Part of

↑ Hereditary neurological disease (5791) ↑ Eye disorder (3079) ↑ Neurocutaneous syndrome (171)

Including sub-types (8) Tagged with Sturge-Weber syndrome (8)

Trials to join now! 2 Not yet recruiting 1 Not yet finished but already full! 2 Completed 3

Can a CBD-Based drug stop seizures before they start?

Prevention Not yet recruiting

This trial tests whether Epidiolex, a prescription CBD medication, can delay or prevent the first seizure in infants with Sturge-Weber syndrome, a rare condition that often leads to seizures and developmental challenges. The study enrolls babies aged 1 to 18 months who have brain…

Phase 2 • Sponsor: Johns Hopkins University • Aim: Prevention

Last updated Sep 21, 2026 17:00 UTC

Sturge-Weber syndrome

Where it sits in the disease tree

Can a CBD-Based drug stop seizures before they start?