Retinal hemangioblastoma

MONDO:0003343

A hemangioblastoma that arises from the retina. It is typically a sign of von Hippel-Lindau disease. It may also be seen as an isolated entity without systemic involvement.

Also known as: hemangioblastoma of vasculature of retina, retinal capillary hemangioblastoma, retinal hemangioblastoma, vasculature of retina hemangioblastoma

1466 clinical trials for this condition and its sub-types, 1 tagged with Retinal hemangioblastoma itself.

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Where it sits in the disease tree

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Part of

↑ Retinal vascular disorder (324) ↑ Hemangioblastoma (10) ↑ Hemangioma of retina (1)

Sub-types of Retinal hemangioblastoma

Isolated retinal racemose hemangioma 0 trials

Including sub-types (1466) Tagged with Retinal hemangioblastoma (1)

Completed 1

Frozen tumors, clearer vision? scientists dig into 20 years of eye records

Knowledge-focused Completed

This study looks back at 20 years of medical records from 25 people who had a freezing treatment (cryotherapy) for retinal hemangioblastoma, a rare eye tumor often linked to von Hippel-Lindau disease. Researchers want to see how well the treatment controlled the tumors and affect…

Sponsor: National Eye Institute (NEI) • Aim: Knowledge-focused

Last updated Jun 27, 2026 13:06 UTC

Retinal hemangioblastoma

Where it sits in the disease tree

Frozen tumors, clearer vision? scientists dig into 20 years of eye records