Parkes Weber syndrome

MONDO:0700325

A rare congenital complex vascular malformation syndrome characterized by overgrowth of a limb (most commonly a leg) involving bones and soft tissue, in association with capillary malformations usually in the form of port-wine stains and multiple arteriovenous fistulas with high-flow arteriovenous shunting. The latter can also lead to other severe complications including abnormal bleeding and heart failure. Lymphatic malformations may also be present.

Also known as: PWS

7 clinical trials for this condition and its sub-types, 1 tagged with Parkes Weber syndrome itself.

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Where it sits in the disease tree

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↑ Congenital vascular malformation (2)

Including sub-types (7) Tagged with Parkes Weber syndrome (1)

Completed 1

French study tracks port wine stains in kids to uncover hidden risks

Knowledge-focused Completed

This study followed 150 children aged 2 to 12 who have a port wine stain on a leg. Researchers tracked how the stain changes as the child grows, and whether it leads to problems like blood vessel issues or bone growth differences. The goal was to learn more about the condition an…

Sponsor: University Hospital, Tours • Aim: Knowledge-focused

Last updated Jun 27, 2026 08:06 UTC

Parkes Weber syndrome

Where it sits in the disease tree

French study tracks port wine stains in kids to uncover hidden risks