Neonatal encephalopathy with non-epileptic myoclonus

MONDO:0100456

A disorder characterized onset at birth of profound encephalopathy with hypotonia, Respiratory insufficiency central hypoventilation, a persistent suppression burst pattern of EEG background, and recurrent bouts of myoclonus that are not accompanied by epileptic discharges on electroencephalography. Evolution to pharmacoresistant seizures is common and continued profound global developmental delay.

1 clinical trial for this condition and its sub-types, 0 tagged with Neonatal encephalopathy with non-epileptic myoclonus itself.

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Where it sits in the disease tree

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Part of

↑ Complex neurodevelopmental disorder (875)

Including sub-types (1) Tagged with Neonatal encephalopathy with non-epileptic myoclonus (0)

Completed 1

New parent support programme shows promise for families of children with complex needs

Symptom relief Completed

This pilot study tested a community-based group programme called 'Encompass' for parents of children under 5 with complex neurodisability. Fifteen parents in East London attended ten group sessions over six months. The study aimed to see if the programme was feasible and acceptab…

Sponsor: City, University of London • Aim: Symptom relief

Last updated Jun 27, 2026 12:05 UTC

Neonatal encephalopathy with non-epileptic myoclonus

Where it sits in the disease tree

New parent support programme shows promise for families of children with complex needs